WISH LIST AND WISHES GRANTED
With your continued support, we can move items from our wish list to our wishes granted list. Please donate generously now!
WISH LIST
SPECIALISED SEATING |
$3,600.00 |
| HORSESHOE HEAD PADS ($110 to $150 each) The rings help to keep the heads of fragile CTD babies in a good shape |
$1,500.00 |
| SOFT CASTING Water friendly casting material for 10 children @$340 per child to swim after fractures or surgery |
$3,400.00 |
| VIBRATING FOOTPLATES Vibrating Footplates for enhancement of bone density in five patients @$3,000 each |
$15,000.00 |
| SPECIALISED WALKING FRAME Specially helpful for children with Brittle bones or multiple joint problems |
$1,500.00 |
| PHYSIOTHERAPY Staff-time to up-date Information Sheets /Handling and Management Guidelines. |
$2,000.00 |
| CAMERA AND COLOUR PRINTER For preparation of OT reports on clinic patients |
$1,500.00 |
| PHYSIOTHERAPIST GRADE 2 (12 hours per week) Essential intensive therapies are needed before and after surgery, ongoing rehabilitation. |
$19,000.00 |
| OCCUPATIONAL THERAPIST GRADE 2 (12 hours per week) To support clearing the waiting list for OT school and activities assessments arising from clinic consultation |
$19,000.00 |
| CLINICAL RESEARCH ADMINISTRATOR (20 hours per week) To coordinate clinical trials and ethics committee monthly reporting |
$31,600.00 |
| EVENTS CO-ORDINATOR (15 hours per week) Maximize and guide the ConnecTeD Committee in their Fundraising Efforts. |
$30,000.00 |
CTD SERVICE CO-ORDINATOR (part –time) |
$32,000.00 |
| Maintenance of Kazimierz Kozlowski Skeletal Dysplasia Reference Library (part-time) |
$32,000.00 |
| SOCIAL WORKER (12 hours per week) For the family’s emotional or practical needs. Working closely with medical staff and family, both during and after hospitalisation, including school issues |
$19,000.00 |
| Fellow in Connective Tissue Disorders |
$150,000.00 |
| MARFAN RESEARCH |
$250,000.00 |
| BONE AND MINERAL RESEARCH Personnel $70,000.00 Equipment $20,000.00 |
$90,000.00 |
| SKELETAL DISORDERS RESEARCH Personnel $45,000.00 Equipment $5,000.00 |
$50,000.00 |
| Arthrogryposis Research & Equipment |
$50,000.00 |
| Ehlers Danlos / Hypermobility |
$72,000.00 |
| Lysosomal Storage Disorders and Innovative Genetic Therapies |
$32,000.00 |
WISHES GRANTED
| SPECIALISED SEATING Spinal support for all Connective Tissue Dysplasia children e.g. Tumble Form Chairs |
$3,600.00 |
| SPECIALISED SEATING ON WHEELS |
$1,260.00 |
| HORSESHOE HEAD PADS ($110 to $150 each) The rings help to keep the heads of fragile CTD babies in a good shape |
$1,500.00 |
| SOFT CASTING (EACH CHILD 12 MONTHS WORTH) Water friendly casting material for 10 children that allows a child to swim after fracturing or surgery |
$3,400.00 |
| ORTHOTICS Vacuum Pump Multiple departments have benefited |
$5,000.00 |
| ENDOCRINOLOGY Purchase of equipment / vibrating Footplates For enhancement of bone density |
$8,000.00 |
| PHYSIOTHERAPY Staff-time to up-date Information Sheets /Handling and Management Guidelines. |
$2,000.00 |
| MANUAL WHEELCHAIRS AND STANDING FRAMES Wheelchairs cost each $3,300.00 |
$7,600.00 |
| COMMODE CHAIR Adjustable for height, padded & extra back support |
$2,500.00 |
| HANDWRITING KIT With equipment and splints for trial |
$200.00 |