SPECIALISED SEATING
Spinal support for all Connective Tissue Dysplasia children e.g. Tumble Form Chairs 

$3,600.00

HORSESHOE HEAD PADS ($110 to $150 each)
The rings help to keep the heads of fragile CTD babies in a good shape 

$1,500.00

SOFT CASTING
Water friendly casting material for 10 children @$340 per child to swim after fractures or surgery 

$3,400.00

VIBRATING FOOTPLATES
Vibrating Footplates for enhancement of bone density in five patients @$3,000 each 

$15,000.00

SPECIALISED WALKING FRAME
Specially helpful for children with Brittle bones or multiple joint problems 

$1,500.00

PHYSIOTHERAPY 
Staff-time to up-date Information Sheets /Handling and Management Guidelines. 

$2,000.00

CAMERA AND COLOUR PRINTER 
For preparation of OT reports on clinic patients 

$1,500.00

PHYSIOTHERAPIST GRADE 2 (12 hours per week)
Essential intensive therapies are needed before and after surgery, ongoing rehabilitation.

$19,000.00

OCCUPATIONAL THERAPIST GRADE 2 (12 hours per week)
To support clearing the waiting list for OT school and activities assessments arising from clinic consultation

$19,000.00

CLINICAL RESEARCH ADMINISTRATOR (20 hours per week)
To coordinate clinical trials and ethics committee monthly reporting

$31,600.00

EVENTS CO-ORDINATOR (15 hours per week)
Maximize and guide the ConnecTeD Committee in their Fundraising Efforts.

$30,000.00

CTD SERVICE CO-ORDINATOR (part –time)
Focal contact point for families, scheduling appointments within the multi-disciplinary CTD clinic & liaising with other hospital departments.

$32,000.00

Maintenance of Kazimierz Kozlowski Skeletal Dysplasia Reference Library (part-time)

$32,000.00

SOCIAL WORKER (12 hours per week)
For the family’s emotional or practical needs. Working closely with medical staff and family, both during and after hospitalisation, including school issues

$19,000.00

Fellow in Connective Tissue Disorders

$150,000.00

MARFAN RESEARCH 
Personnel $214,000.00 
Equipment $36,000.00 

$250,000.00

BONE AND MINERAL RESEARCH
Personnel $70,000.00 
Equipment $20,000.00 

$90,000.00

SKELETAL DISORDERS RESEARCH 
Personnel $45,000.00 
Equipment $5,000.00 

$50,000.00

Arthrogryposis Research & Equipment

$50,000.00

Ehlers Danlos / Hypermobility

$72,000.00

Lysosomal Storage Disorders and Innovative Genetic Therapies

$32,000.00

SPECIALISED SEATING
Spinal support for all Connective Tissue Dysplasia children e.g. Tumble Form Chairs 

$3,600.00

SPECIALISED SEATING ON WHEELS

$1,260.00

HORSESHOE HEAD PADS ($110 to $150 each)
The rings help to keep the heads of fragile CTD babies in a good shape 

$1,500.00

SOFT CASTING (EACH CHILD 12 MONTHS WORTH)
Water friendly casting material for 10 children that allows a child to swim after fracturing or surgery 

$3,400.00

ORTHOTICS
Vacuum Pump Multiple departments have benefited 

$5,000.00

ENDOCRINOLOGY
Purchase of equipment / vibrating Footplates For enhancement of bone density 

$8,000.00

PHYSIOTHERAPY 
Staff-time to up-date Information Sheets /Handling and Management Guidelines. 

$2,000.00

MANUAL WHEELCHAIRS AND STANDING FRAMES
Wheelchairs cost each $3,300.00 

$7,600.00

COMMODE CHAIR
Adjustable for height, padded & extra back support 

$2,500.00

HANDWRITING KIT
With equipment and splints for trial

$200.00